I really will try to post pictures tomorrow. I think I can post photos from my mothers computer. Remember, my computer is dead...well both of our laptops are dead. One is suffering from mother board issues which are too costly to repair. The older one is waiting on the arrival of one part...waited over 3 weeks now..an easy fix when the part arrives...so, I'm at work at 10:05, asking for prayer. ( And, my digital camera died...so I just ordered a new one, minutes ago, 2 day shipping, I have a wedding coming up!
Good News: Caleb arrives home in six days. YAY! The wedding to follow 3 days later. We've been showering (gifts and good food) and planning. The excitement builds.
In the meantime, the enemy has attacked as he so often does when God is pouring out his blessings...He wants my joy, but in the words of Mercy Me....I'm not about to give up. I'm notI might bend, but I won't break...as long as I can see Your Face.
So, here's the prayer requests:
For me, the second injection in my neck seems to be working better than the first. I didn't take anything for pain today, until last this evening. Please pray a pain free visit when Caleb comes home. Bone spur, go away.
For Ellie:
Oh, my, where to begin.
Short Story: She has yet another urinary tract infection, the 3rd or fourth this year.
Long Story:
Meds should keep her dry between caths. The past week, her pull up would be soaked, and her catheter would be empty...sure sign of infection. I couldn't get a specimen for the dr, bc her bladder would NOT hold any urine for me to catch.
Finally, specimen to the dr on Tuesday. Yes, infection, start antibiotics, wait on culture. Yesterday, long phone conference with her urologist about beginning prophylactic antibiotics to protect her one and only kidney.
Today, many phone calls between her primary dr and me. Culture came back.
Salomonella.
In her urine.
New one to me.
Unusual...
Not unheard of, but serious, especially for someone who has only one kidney.
What to do?
Continue antibiotics.
And, her bladder should be irrigated once a day for the next 14 days--irrigated with an iodine and saline solution, from a syringe through a catheter to her bladder.
Okay, how do you do that?
I'll call you back.
Phone call #2: No one in our little tiny town or the neighboring tiny, but not little tiny town, has the supplies for such a young child....so, you're going to need to take her to the hospital once a day for the next 14 days to have it done.
Me---um, can't I contact the supply company where we receive supplies already and see if they can send them..
Nurse, yes, dr has no problem with your doing it....just we can't find the supplies for you.
Me--okay, but I still need to understand the procedure.
Phone call #3...me and the dr.
She gave instructions...but it is now after 5 pm on a Friday. Can we wait until Monday to begin irrigation or should we go to the hospital tomorrow.
It can wait until Monday.
So, we're taking antibiotics and on Monday, I must find someone who can get me the supplies we need...I think the company we use will overnight them, please pray we can take care of this.
We need a healthy Ellie.
Her brother is getting married in 9 days.
She is a flower girl.
She has a beautiful white dress.
She will be pulled in a lovely decorated wagon.
She is excited.
Pray as I know you will dear friends.
Throw money if you like...
Okay, I'm kidding about the money....
But......
I think I'm delirious now.
Love to anyone who still reads.......
Friday, August 27, 2010
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4 comments:
Oh Robbie, we have been home 6 months with our spina bifida girl. It has been one of the hardest things I have ever done. God has been very faithful. But my heart is WITH you. I am so sorry it is so hard! May the Father be with all of you!
Sending hugs and prayers,
Lynda Strite
I'm still with you, sister, and I am praying. I love you and your precious Ellie!
Prayers flowing from West MI. You have a lot on your plate again. I'm sorry that Ellie is struggling. It's not fair. Please know that you are ALL in my thoughts and prayers.
I am praying!! Satan will not win this one!
Amy
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