Why We Call Our Blog the Miracle of More

The miracle is a beautiful image of Ephesians 3:20--more than I can ask or imagine. Every day is a miracle. Every moment is a miracle. Specifically for our family, the miracle of more is our family growing in ways I would never have imagined when we first committed to adoption 8 years ago. But, the greatest miracle is the change in ME!

If you have questions about adoption, our work in South Africa, or spina bifida, please email me at rbmattox@bellsouth.net

Thursday, September 10, 2009

A More Detailed Update

Hello My Friends,
I wanted to let you know that we received news I did not
want to hear yesterday. I must admit discouragement today. I
know that God's grace is sufficient and we will make it, but
for today, I am weary.

Urology:
It seems that Ellie's bladder is working too hard when it empties.
While she does void without assistance, this extra pressure
puts too much pressure on her one and only kidney. The good
news is that there is no kidney damage at this time. The
difficult for mama to swallow news is this:

Ellie will start taking medication to relax her bladder.
THis will allow her bladder to fill, but she will no longer
be able to urinate; therefore, we must start using a
straight cath up to 5 times a day. While this is common in children and adults with spina bifida, and I knew it might happen some day, I suppose I was not prepared for this news yesterday. I really thought there may be and trial and error period with the medication and timed voiding. I was surprised, I guess, that we would go immediately to cahting.

Stan and I had to learn
to do that yesterday. It was NOT< NOT< NOT fun. I had to
"practice" a medical procedure with my 4 year old child as our
dummy. I learned that she does have much more sensation that
we first realized, so she was in pain as Stan and I poked
and prodded while learning how to insert a catheter. Now, we
come home to do this, without a nurse to guide the way. AND, I
have to instruct a school staff member to do this as well,
because she will need to cath at least once a day while she
is in school.

Yes, the news could be worse. Yes, she will learn to do it
herself one day. Yes, one day it will just be second nature,
like putting on socks, or just going to the bathroom...but
for now I am down.

I know that God's grace is sufficient. I know that I can do all things because Christ gives me strength. I know that Ellie was fearfully and wonderfully made. I know this news is about Ellie, not about me.I know that God entrusted her to us!! I know that God placed me in the family of God so that we could support one another. Thank you for the prayers you've already prayed. Please keep them coming!

8 comments:

Faith, Hope, and Love said...

That would be upsetting news for any mama. Poor Ellie girl! Keeping Ellie in my prayers!!

Blessings,
Robin

Kim K. said...

I'm so sorry. It must have been so hard to hear this news. Please know that I'm thinking of you ALL right now.

Oatsvall Team said...

oh sister, i am crying w/ you right now ... feeling very emotional these days and as i read your post i felt your mother's heart and just wept w/ you and for you ... you are right we serve an amazing God ... When our children hurt or must go through something we feel it 10x greater ... I am sorry about your news, but then i stop and get on my knees that she is home w/ you and not still in an orphanage ...

Love You Sister and will be here praying w/ you as you take this new journey ...

samuelsadoption said...

Just to let you know we love you.

~ Lisa @ AbidingThere~ said...

Loving you guys and praying for peace and comfort for all of you. xo

Chelsea Gour said...

I remember when the nurse called to tell us that we had to come to the hospital to learn to cath Claire. I remember how she screamed and cried for first week....every single time we had to do it. I remember the "training session" and how we left the hospital with a handful of catheters thinking, this is our life now? We had no idea what we were doing, Claire didn't understand. It was horrible. But, every week it got a little better and then every day. We got control of the situation. We relaxed, she relaxed, and yes, it's second nature now. But, that doesn't mean we have to like it. It's okay not to be happy about it right now. I will pray for peace for you.

Talley Images said...

oh, sweet one, this must have felt like a punch in the gut where you were gasping for air and none was to be found.

I will pray for some peace to settle on you and on this situation...

I wish I could hug you and tell you everything is going to be ok...

Grimes Family said...

Robbie,
Can't help but feel a lump in my throat as I read you're post.... I still choose to believe that God is control. Much love and hugs...
Grimes Family

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